Understanding Moebius Syndrome
Moebius syndrome is an extremely rare congenital neurological disorder. It is estimated to affect approximately 2 to 20 per million births. Knowledge and understanding are the first steps toward building a more inclusive world.
Neurological Condition
Moebius syndrome is a rare neurological condition present at birth that primarily affects the muscles controlling facial expression and eye movement.
Cranial Nerves
It involves underdevelopment of the 6th and 7th cranial nerves, which control lateral eye movement and facial expressions respectively.
Present at Birth
Signs are typically noticeable at birth. Infants may have difficulty sucking, lack facial expression, or be unable to move their eyes side to side.
Facial Expression
Many individuals with Moebius syndrome cannot smile or frown. However, they express emotions in many other ways, through their voice, eyes, and body language.
Treatment & Support
While there is no cure, various treatments can help manage symptoms including speech therapy, physical therapy, and in some cases, surgeries for eyes or limbs.
Living Fully
People with Moebius syndrome can live rich, fulfilling lives. Many are accomplished athletes, artists, professionals, and advocates.
Help Someone Learn About Moebius Syndrome
Want to explain Moebius syndrome to someone in the moment? Hold up your phone and ask them to scan the QR code. It takes them straight to the official foundation page with clear information.
Scan to learn about Moebius syndrome
What is Moebius Syndrome?
Moebius syndrome is a rare neurological condition characterized by facial paralysis and limited eye movement, caused by the underdevelopment of the 6th and 7th cranial nerves. Although Moebius syndrome can have a wide range of symptoms, and some cases may be more complex than others, people with Moebius often live full, vibrant lives. They just may express themselves differently.
The QR code links to the Moebius Syndrome Foundation's overview page. It's a great starting point for friends, family, doctors, teachers, or anyone curious to learn more.
Visit the Foundation WebsiteOur Mission
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, to promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research that advances the diagnosis and treatment of Moebius syndrome and its associated conditions.